My rare disease is called pheochromocytoma, a type of adrenal gland tumour that secretes dangerous amounts of hormones like adrenaline.🦓 Somehow I became the one in a million. That’s a 0.0001% chance of being diagnosed with a pheo. An even smaller percentage of that are people my age. and an EVEN SMALLER percentage of that are people with no known genetic mutation, like me. My main original symptom was extremely high blood pressure. The chances of that being caused by a pheo was less than 0.2%. To make that EVEN MORE rare, I’m also one of the very few people who don’t feel better after surgery.