I am so happy to have found my heart plushie and I love it so much. I have a congenital heart defect called Ebstein's Anomaly.
When I was born my heart was too enlarged and the right side was not functioning properly. The surgeons at Seattle Children’s Hospital had to remove the right side.
I am now 25 and have only ever lived with half my heart (the left side). Having a heart condition has changed my life. I am the only one in my family to have half a heart.
Back in 2017 I was told that I would need a heart transplant. I went through the whole process but sadly got denied the transplant. In 2018 I had a catheter at New York Langone with my first ever cardiologist from Seattle. I then was told that sleeping with oxygen would be good for me. I have slept with oxygen since then.
I embrace my scars and the journey of my condition.